Hello @novajeff,

I am sorry to hear of your internal vibrations. It sounds as if this is affecting many areas of your life and that it is not easy to adjust. It is a very frustrating thing to have a problem that doctors cannot diagnose and treat. Many of us on Connect, myself included, have had problems that took perseverance and years of searching before we found answers.

It sounds like you have been advocating for yourself quite well. You have seen a variety of specialists and they all seem to be trying very hard to help which is a good thing.

Is your neurologist considered a "movement disorder specialist?" This is a specific type of neurologist who deals with movement disorders.

Hard to diagnose problems can often be solved if you go to a Mayo facility for a consultation. Here is a link for their appointment department, http://mayocl.in/1mtmR63. In lieu of an appointment at Mayo, a university medical center that has a multi-disciplinary approach would also be good for a complicated issue such as yours.

Do you have any other problems that you might not have mentioned, such as a staggering gait (walking) problems, balance or vision problems?