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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: Sep 29 9:08am | Replies (901)
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@lisalucier

Hi, @novajeff - welcome to Mayo Clinic Connect. The trouble with internal vibrations you are talking about, the dread and the sleep disturbances sound tortuous, as you said.

I wanted to let you know I moved your post here so that you can talk with others discussing internal vibrations here in this thread. Please meet @shuvhfa1 @cathy514 @jager5210 @redladyjoni @hopeful33250 and others. I'd also like you to meet @jenniferhunter. Hoping they will have some input on how to get some help so you can get some relief.

Are you thinking of proceeding with the skin punch biopsy, or do you have other thoughts on what will be your next step in getting some answers?

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Replies to "Hi, @novajeff - welcome to Mayo Clinic Connect. The trouble with internal vibrations you are talking..."
novajeff | @novajeff | Mar 8, 2020

Thanks @lisalucier Lisa,

It is torture and terrifying. It is sunny and nice in Philly today so I am outside for the majority of the day doing yard work, so it will be interesting to see how the soreness and tremors are tonight after all this muscle exercise.

I am going to press for the skin punch biopsy and any other test they want to throw at me. I need answers and resolution. I am also going to press for the sleep test and spinal MRI. I’m also surprised none of the neuros have pursued a spinal puncture either.

Thanks again for your post and trying to connect me with others. One of the scary things is, when I use a detailed google search for my issues, I’ve found 5-7 people who clearly have had the same issue over the past 1-3 years, but after they post, they just disappear.

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