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Just Want to Talk | Last Active: Apr 4, 2023 | Replies (3672)

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@contentandwell

@parus I am about to be searching once again for a new PCP. I hate this. All of the good ones up here are not taking new patients. Now that the doctors are all owned by the hospitals it's a whole different world too, more like a business and they have 9 - 5 jobs with no OT since if patients are in the hospital they are cared for by hospitalists, and if they get sick beyond office hours they go to urgent care.

I was told the last time I had to find a new PCP to stick with a doctor of internal medicine, they are better at diagnosing generally, and are better for older patients. Family practice doctors are just that -- good for young parents and their children.

@jakedduck1 I'm sorry to hear about your license. If your seizures are under control then I hope you can get it back. I lived in fear of losing my license when I had cirrhosis with HE episodes. A person with an HE episode should not be driving and in some states that's an immediate cause to lose your license. I never lost mine, I am not sure if it's not a law here or in MA or if it was because my HE episodes had symptoms that let me know I was about to have one so if I was out I would immediately head home. Sometimes I would not get one at all, but sometimes an hour or two later I would. In between episodes I was perfectly cognizant, which is not true for many people who have HE.
JK

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Replies to "@parus I am about to be searching once again for a new PCP. I hate this...."

@contentandwell
Thank you for your concern. In California at least some people who have Focal Aware Seizures are allowed to drive as are people who only have Nocturnal Seizures.
I read Seizures happen in 2-33% of hepatic encephalopathy patients and apparently Non Convulsive Status Epilepticus is common in people with HE and seizures.
I’m glad you made it through without any.
Jake

@contentandwell It is discouraging going to a doctor. I had blood work done and have heard nothing. So blasted irritating!!! I am endeavoring to be optimistic since this doctor is internal medicine. Hard to get help for medical issues when we are not even allowed to talk or ask a question. Depression has taken hold. Another biopsy Monday morning to check status of bladder. Finding myself living in a world that has become unappealing. Grateful I am still treading water. Best I can do for now.
I hide away and no longer feel like trying.