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Gratitude Discussion Group

Just Want to Talk | Last Active: Apr 4, 2023 | Replies (3672)

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@parus

@merpreb I have 5 more treatments with the BCG and if no infection returns treatments will go to once a month and so on. This was a positive experience as the nurse does the instillation of the BCG. She has been so helpful and informative. We both have a sense of humor and this makes the procedure feel less invasive. I have positive things to say about how this is being handled once we all were able to get on the same page. This type of thing is never something pleasant and it helps to have staff who realize the embarrassment that accompanies. The side effects from the 1st treatment have not been bad thus far. The nurse told me the side effects typically increase with each treatment. At least now I no longer dread it so much. I was the only one there that day for a treatment. Nice to once again be treated with compassion with a dash of humor.

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Replies to "@merpreb I have 5 more treatments with the BCG and if no infection returns treatments will..."

@parus So glad to hear the positivity in your post. And very glad you have a great team of paraprofessionals.
Ginger

@parus Humor sure does help and it is nice when you feel the compassion and empathy from the nurse. It gives you a much greater sense of control when you can be fully present and involved. Good for you!

@parus- I am so glad to hear this! When something so "delicate" has a chance of going two ways, it's always great when it's not the bad way! I remember when I had my port "installed" for chemo. The Dr. was leaving my chest exposed because he had cleaned it a bit early. The nurse kept pulling the sheet back over me. This wnet back ad forth several times. I finally said, I need some valium!

@parus I'm so glad that you felt that you were treated with respect and kindness! That means so much and you deserve nothing less.

@parus It is always so good to hear that someone has had a good experience with their nurse! It makes a difficult experience much less difficult. And I’m glad to hear that your treatments are going well. And you sound better, too!