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Gratitude Discussion Group

Just Want to Talk | Last Active: Apr 4, 2023 | Replies (3672)

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@htinlizzy

Hi I’m new to the group and Mayo Clinic. I’ve been coming here since October 2018. I had an Acoustic Neuroma tumor in my left ear since 2014. I’m 61 years young. The tumor began to grow and cause problems for me. The neurosurgeon I was seeing for it kept telling me it hadn’t changed in size but my symptoms sure had changed. So I looked to my ENT for help and told him I wanted to go to Mayo Clinic for the surgery to remove the tumor and get a cochlear nerve implant because my hearing was diminishing in my only good ear. I was down to 45% hearing in my right ear and no hearing in my left ear. That’s what the Audiologists found her at Mayo. I still had life in my cochlear nerve if they turned the volume up all the way. So this meant I had a 50% chance of the surgery working. I have Dr Matthew Carlson as my Doctor here at Mayo. I come back Monday for them to turn on my implant for me. I also have Aniket Saoji that is doing everything for my implant and Christopher J Plummer that worked with Dr Carlson on me! They are the best angels you can have!!! I’m so anxious to hear out of my left ear. I just know this is going to work. These three angels that operated on me worked a miracle for me on the 21st and they are my 1st and biggest gratitude!!!!

Liz waiting to hear in Illinois

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Replies to "Hi I’m new to the group and Mayo Clinic. I’ve been coming here since October 2018...."

Hi @htinlizzy and welcome Mayo Clinic Connect. I'd like to direct you to a few groups that will be of interest to you:

1. Brain Tumor group https://connect.mayoclinic.org/group/brain-tumor-support-group/
You'll find others talking about acoustic neuromas here:
- Anyone else diagnosed with acoustic neuroma, a benign brain tumor? https://connect.mayoclinic.org/discussion/my-name-is-tracy-daley-i-live-in-omaha-nebraska-my-diagnosis/

2. Hearing Loss group https://connect.mayoclinic.org/group/hearing-loss/
There are several discussion in this group that you might wish to explore, including one about cochlear implants.

Let me know if I can help you navigate the community.

@htinlizzy Hi LIz! I'm here in IL too and I wish you a great recovery. You certainly have something to look forward too. What I'm hearing now is the flocks of Sandhill Cranes migrating back to their homes to raise families this spring. I live along the flyway along the Fox River and cranes will nest in the wetlands behind our house, so we see and hear them all summer. The chickadees are singing too, and one day soon, the snow will melt and flowers will emerge. Good for you for advocating for yourself. Thanks for sharing your story. Gratitude is wonderful, and I have a lot of that for my Mayo surgeon who changed my life. It was nice to meet you here!