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nowayback (@nowayback)

Oesophageal tumour

Head & Neck Cancer | Last Active: Dec 9, 2018 | Replies (14)

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@alpaca

@nowayback Try not to be too isolated even if you have to deliberately schedule some social contact into your week. I took a computer course when I was still in the heavily scarred stage – one for old people who tend to have their own physical issues anyway. There are usually exercise classes for people who are in rehab for cancer and other illnesses. Learning a new skill from home can be useful too – an online course maybe. Snot, saliva and mucous are hard to manage (I know a lot of laryngectomees), I agree. Ask your team about some tips and tricks to handle this when with others?
As Colleen says, participating in online discussions can be a way of staying connected too. The one for advanced cancer could be very helpful – you get to know the people and it's a good substitute for the real thing. Mayo is fantastic but a dedicated forum for your cancer might help. I can't check this one out because you have to join but it looks good. https://www.smartpatients.com/forums/esophageal-cancer. Hope you get to meet a fellow patient soon.

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Replies to "@nowayback Try not to be too isolated even if you have to deliberately schedule some social..."

Hi Maureen
Yes it's so hard but I know that I must make the effort. I've spent the last 3 years telling myself that 'once I am back to normal' then everything will be fine but now I know that will happen so it's up to me to try to adapt to the change. I still can't quite come to terms with the fact I may never be able to eat or drink again & the implications of this frighten me as if I am losing something major(which it is obviously) One key thing is that if I try to keep busy doing stuff then I can forget for a while but this is generally in the morning before I have to go on my feed machine for 18hours a day. It's the day in day out routine of that & springing water/tablets that gets to me too, as if a reminder of the whole tragic situation.
Anyway thank you for the links I will explore them.