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nowayback (@nowayback)

Oesophageal tumour

Esophageal Cancer | Last Active: Dec 9, 2018 | Replies (13)

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Hi Colleen
Thank you for your kind response & no need to make any apology on behalf of people, we are all going through a very trying time.
I reacted mainly as you say out of sheer frustration & despair for my predicament so I should be apologising.
My frustration is that I am unable to do anything to help myself & whilst there is a small chance that another procedure might work it's very unlikely as I explained. The feelings of emptiness & hopelessness are so strong as I am constantly thinking about my situation all the time I am awake, mainly because of my on going symptoms & I guess I just cannot accept that I might be like this for the rest of my life leading to me having the awful thoughts of ending it all.
Your question about my consultant contacting the Mayo clinic is interesting as I have been told that they have contacted specialists in Oesophageal issues around the world but with no real luck apart from being notified about the Jump great procedure.
I am not sure how I go about contacting the Mayo clinic perhaps you can please provide me with some idea of how to do this thanks.

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Replies to "Hi Colleen Thank you for your kind response & no need to make any apology on..."

I'm relieved to hear back from you, @nowayback. I have a few thoughts to your comment.

Contacting Mayo Clinic
It is possible that your specialists have already consulted with Mayo experts. However, you can inquire with no obligation at Mayo Clinic yourself through the International Services https://www.mayoclinic.org/departments-centers/international

Isolation and connecting with others
It is so discouraging that the rareness of your condition and unwanted side effects are isolating you more and more, not only medically, but from friends and generally being with people. While it is a weak social proxy, I wonder if you would like to participate in some of the other non-oesophageal discussions on Connect. Here are a couple that may interest you:
- Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/
- Gratitude Discussion Group https://connect.mayoclinic.org/discussion/gratitude-discussion-group/