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CAR-T cell Therapy: Joint and muscle pain

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Aug 9 9:26am | Replies (46)
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@grannybrenda

Mark this is Brenda. Bob’s wife and care giver. He remember very little of the whole two weeks he was in the hospital and even some things from after he got out. He has no real desire to know or hear about it either. As our son (40years old) said, “ It’s okay dad you don’t need to remember. Mom and I will never forget. “
I think the joint pain came long after release from the hospital.
Brenda

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Replies to "Mark this is Brenda. Bob’s wife and care giver. He remember very little of the whole..."
raemark | @raemark | Nov 20, 2018

Thanks for your message, Brenda. Your son summed it up well. Bless your hearts, 2 weeks is a long time .... But when we were asked if it was worth it, we of course said that it was. May you have many GOOD memories! Mark

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Colleen Young, Connect Director | @colleenyoung | Nov 20, 2018

Welcome to Connect, @grannybrenda and @grandpabob. I love your usernames 🙂 I hope you also saw the CAR-T group introductions discussion.
* CAR-T Cell Therapy: Introduce yourself and connect with others https://connect.mayoclinic.org/discussion/car-t-cell-therapy-introduce-yourself-and-connect-with-others/

Feel free to peruse the posts and get to know the members of our small, but growing group. Bob, you mention that the joint pain is intermittent. Are you finding that is also getting less as time goes on?

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