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CAR-T cell Therapy: Joint and muscle pain
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Aug 9 9:26am | Replies (46)Comment receiving replies
I am feeling very good now. Strength and energy is coming back nicely. I had pretty much all the published side effects that we were told about. Neuro toxicity, CRS, slow heart rate, high fever. I spent 2 weeks in hospital one of the in ICU. All worth the end result.
Replies to "I am feeling very good now. Strength and energy is coming back nicely. I had pretty..."
Your story is encouraging
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Hi Bob, my husband Graydon had the CAR T infusion on the 2nd of October so only 45 days out but he has had considerable bone and joint pain. I asked him if he thought it was Chemo or CAR T relat d and he thinks probably a combination of both for him. He has had a lot of accumulated chemo and radiation over the last 3 years. That is one reason why he may not recovering as quickly as some of the other patients. So sorry we didn’t have a good answer to your concern but know that you are not alone in your symptoms. Maybe as more patients go through the treatment more info will become available. Glad to know you are doing very well otherwise. We hope for the same. Greta