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CAR-T cell Therapy: Joint and muscle pain
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 5 9:07am | Replies (50)Comment receiving replies
Hello @grandpabob, welcome to Connect. I would like to invite a few other members to this discussion who have either gone through the treatment or have had a loved one go through treatment to share if they have had any joint and muscle pain. @annmillercarr, @raemark, and @greta_k may have some experience to share with you about whether or not they or their loved one had joint/muscle pain.
@grandpabob, other than the joint and muscle pain, how are you feeling? Did you have any other side-effects that you had to deal with?
Replies to "Hello @grandpabob, welcome to Connect. I would like to invite a few other members to this..."
HI Just finished my Cart T first August. I have begun to get deep pain all over my body.
Its been at least 45 days since my Cart T. Doctors say its not the dreaded side effect, but it is an side effect. We're still searching on how to make it not so painful. Keeping me in bed too much Im ready to get going. I'm still fatigued and moving slow but that's OK
Nice to meet you
Linda
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I am feeling very good now. Strength and energy is coming back nicely. I had pretty much all the published side effects that we were told about. Neuro toxicity, CRS, slow heart rate, high fever. I spent 2 weeks in hospital one of the in ICU. All worth the end result.