My son's neuroendocrine tumor

Posted by lendries @lendries, Nov 11, 2018

My 17yr old son suffered a ruptured appendix. After surgery to remove his appendix, pathology found a neuroendocrine tumor in it. And 1 of the 3 lymph nodes that came out with the appendix had less than 3 percent cancer cells in it. We are waiting 6 months for things to heal inside then having a pet scan done to see if it had spread anywhere else. Has anyone else had this? If so did it spread? I understand this is pretty rare for a child to get this tumor.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 7, 2019

In reply to @lendries "Yes in March." + (show)

Hello @lendries

As you mentioned in a previous post, your son will have an appointment at Mayo next month. How is he feeling these days?

Teresa, Volunteer Mentor | @hopeful33250 | Feb 21, 2019

Hello!

As I know that some of you are new to the NETs diagnosis, I wanted to share with you a presentation given by Mayo's Dr. Thor.
https://mail.google.com/mail/u/0/#inbox/FMfcgxwBVqMhZHqwvsllZJLfXTQvnjvg?projector=1

Teresa, Volunteer Mentor | @hopeful33250 | Apr 10, 2019

Hello @lendries

As I recall your son was going to be seen at Mayo in March for a follow-up. I hope that went well and that he is feeling better now.
As you are comfortable doing so, could you provide an update?

lendries | @lendries | Apr 10, 2019

In reply to @hopeful33250 "Hello @lendries As I recall your son was going to be seen at Mayo in March..." + (show)

My son is feeling great. He was seen at Mayo this past Monday. They did a full body PET scan for Neuroendocrine cancer cells and found nothing. They did find a 2mm nodule on his right lung that they are not too concerned about but to be safe they want him back in 6 months just to take another look at it to make sure it is not growing into something. We were happy with the results. He has been feeling well all winter and did participate in his school sports without any problems. All is great right now. Thanks for checking in.