You're probably right, @mgreene. Lists like these can be a challenge to keep up to date. Organizations appreciate being notified when there are updates to help maintain them.

@hopeful33250, you or I could send them a note. I had to smile when I went to their contact page https://www.carcinoid.org/contact/
This was their latest tweet
https://twitter.com/CarcinoidNETs/status/1064960539649064962