Hello @lendries
Here are some of the doctors at Mayo, Minnesota, who specialize in NETs. Perhaps your son was already seen by one of them.
Thorvardur R. Halfdanarson, MD (Medical Oncology)
Rochester - SPECIALIST
Timothy J. Hobday, MD (Medical Oncologist)
Rochester - SPECIALIST
David M. Nagorney, MD (Gastroenterologic and General Surgery)
Rochester - SPECIALIST
I have had three NETs (all in the duodenal bulb). My first surgery in 2003 was .8 cm, the second in 2005 was .3 cm and the third surgery was not until 2016, less than 1 cm.
Was your son seen by any of these doctors? Will you post again if you have any questions or concerns?
Yikes. THREE in the same place? Has your specialist ventured any theories why you keep getting them? Does the small size of yours mean, as in my case, the likelihood it has spead is small? Do you have an annual upper GI like I have an annual colonoscopy?