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Neuroendocrine Tumors (NETs) | Last Active: May 5, 2019 | Replies (25)
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Thank you for this reply. That really helps to know that there is a chance it will not metastasize since it was 1.8cm. We were told it was a very slow growing cancer. We just did not know how slow? We only were in to see 2 oncologists at the mayo and a surgeon who does appendectomies. I will look into trying to schedule an appointment with a NET's specialist. I did not know there were those actual specialists at the mayo. Thank you again so much for taking the time to chat with me. This does make me feel better.
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Hello @lendries
Here are some of the doctors at Mayo, Minnesota, who specialize in NETs. Perhaps your son was already seen by one of them.
Thorvardur R. Halfdanarson, MD (Medical Oncology)
Rochester - SPECIALIST
Timothy J. Hobday, MD (Medical Oncologist)
Rochester - SPECIALIST
David M. Nagorney, MD (Gastroenterologic and General Surgery)
Rochester - SPECIALIST
I have had three NETs (all in the duodenal bulb). My first surgery in 2003 was .8 cm, the second in 2005 was .3 cm and the third surgery was not until 2016, less than 1 cm.
Was your son seen by any of these doctors? Will you post again if you have any questions or concerns?