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My son's neuroendocrine tumor

Neuroendocrine Tumors (NETs) | Last Active: Dec 22, 2024 | Replies (29)

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@mgreene

Did the path report tell you the size of the tumor? The fact that your son has no symptoms is a hopeful sign that the disease has not spread. I was found to have a rectal carcinoid in 2000 as a result of my first colonoscopy. My gastroenterologist, internist, consulting oncologist and a research oncologist at the University of Texas Southwestern Medical School all were wrong about my prognosis. Five years later I could no longer ignore my instincts and found one of three specialists at the time. He refuted everything I had been told by the five Dallas doctors. In 2010, the cancer returned and was removed via surgery. Probably due to an errant cell left behind when original tumor was removed. I had no symptoms. I continue to have an annual colonoscopy and blood-work. Now, the medical profession is more aware of neuroendocrine cancers. But I urge you to consult with a NET specialist.

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Replies to "Did the path report tell you the size of the tumor? The fact that your son..."

That is so great that you advocated for yourself and found a NET specialist, @mgreene. Yes, those "errant cells" can cause problems.