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My son's neuroendocrine tumor

Neuroendocrine Tumors (NETs) | Last Active: May 5, 2019 | Replies (25)
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@lendries

My son is feeling good. His surgery was September 9th. He has no symptoms of anything. We were seen at Mayo on October 1st and 8th for consultations. They are the ones who said to come back in March for a full body pet scan and go from there. But we are so worried about it. Did it spread or is it spreading? This waiting period is really hard not only on us parents but him too.

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Replies to "My son is feeling good. His surgery was September 9th. He has no symptoms of anything...."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 12, 2018

Your concern during this waiting period is understandable, @lendries. I am so glad that your son is having follow up at Mayo. They have good NET specialists there. Yes, the waiting period is the toughest part now. The full body pet scan will be a good way to follow up.

Do what you can to keep worry to a minimum, it will make it easier for you and your son, if you can avoid dwelling on it (and I know this advice is much easier said than done).

So, if I understand correctly, his full body scan will be done in March?

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