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PMR or Steroid Myopathy

Polymyalgia Rheumatica (PMR) | Last Active: Feb 2, 2023 | Replies (30)

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@johnbishop

Hello @beachbum80 -- I would like to add my welcome to Connect along with @ethanmcconkey . Thank you for sharing. I've had two occurrences of polymyalgia rheumatica (PMR) and was on prednisone for the 3 years the first time and 1-1/2 years the second time. The drug can have some devasting side effects for some people. I'm glad that you were able to get off of the drug and your kidneys are back to functioning normally. I'm sorry you were left with steroid induced myopathy. While we wait for others to respond to your post it sounds like you are doing everything you can to help with the symptoms. I did find the following article which talks a little about steroid induced myopathy and the role of exercise in treatment.

When Steroids Melt Muscle
-- https://www.elitecme.com/resource-center/rehabilitation-therapy/when-steroids-melt-muscle/

Have your doctors suggested any other treatments or have you thought about getting a second opinion?

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Replies to "Hello @beachbum80 -- I would like to add my welcome to Connect along with @ethanmcconkey ...."

Hello John and thank you for your quick response. After reading the article you forwarded I now realize there maybe an answer to my shortness of breath,in that, my respiratory muscles may be affected by the myopathy. When the doctor sounds my chest it is always clear as a bell and my o/2 stats are are always excellent. I do pool exercise for an hour two to three times a week and hope this will help to keep me going. Your article also mentioned how resistant exercises may benefit myopathy. I will certainly give it a try! Once more thank you very much.