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PMR or Steroid Myopathy

Polymyalgia Rheumatica (PMR) | Last Active: Feb 2, 2023 | Replies (30)

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@johnbishop

Hi @carley, your symptoms seem similar to mine when I was first diagnosed with PMR. I have no medical background or training but I would ask the doctor if they think setting up an appointment with a rheumatologist is the next step. Also, I wasn't quite sure on the dosages of prednisone. Normally when you are diagnosed with PMR and they give you prednisone they start with a dosage like 20 mg and if it makes the pain go away, you gradually taper off of the drug until you can stop taking it without pain. I would ask the doctor if tapering off too soon could possibly be part of the problem. It took me 3 years to taper off the first occurrence of PMR.

John

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Replies to "Hi @carley, your symptoms seem similar to mine when I was first diagnosed with PMR. I..."

I do have a medical background in OT. I have not been diagnosed yet. Still waiting to rule in or out RA. After reading posts on another website I am pretty convinced I may have pmr but don’t want to rule anything else out yet. Making an appt with rheumatologist is on my mind, but in my area they are rare and long appt waits. Dosage of prednisone was to help with the inflammation initially. It appears to me that my symptoms subsided with larger dose and increased when I was taking less. I will know more when I am done with this round of 20 days. I’m sure if he suspects pmr, we will look at the dosage more closely. Just to add, it appears my symptoms started after I had flu shot. I’m not saying it caused it to flare, but I have seen other posters with similar symptoms. Any thoughts?