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Pauletta (@rachelp)

PMR or Steroid Myopathy

Polymyalgia Rheumatica (PMR) | Last Active: Apr 22, 2019 | Replies (25)

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@johnbishop

Hello @obetv, welcome to Connect. I also have PMR which is currently in remission. I can tell you the each of us with PMR is different in the way the disease affects us. My first occurrence of PMR was in 2007 and it took me 3 years to taper off of prednisone. The last 6 months of the first occurrence was going up and in the dosage from 1 mg to 1/2 mg and back up to 1 mg until I was finally able to stop taking prednisone and not have a lot of pain. The PMR went into remission for 6 years and came back in 2016 and lasted around 1-1/2 years. The second occurrence I tapered much slower using smaller decreases in dosage until I was able to stop taking prednisone.

No one can really tell you how long you can expect to be on prednisone since we are all a little different on how the disease affects us. I would really suggest talking to your rheumatologist to see if he can give you some different tapering options to see if you can come up with something that works for you. It might be worth discussing methotrexate with your rheumatologist since it may let you use lower doses of prednisone.

Methotrexate in polymyalgia rheumatica: preliminary results of an open, randomized study.
https://www.ncbi.nlm.nih.gov/pubmed/8730115

@obetv has your doctor suggested any specific tapering schedule for prednisone?

John

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Replies to "Hello @obetv, welcome to Connect. I also have PMR which is currently in remission. I can..."

Thanks John for your reply.
My tapering rate has been to go down 1mg every 2 months, that is slowly. I feel with the return of pain esp. in my neck that I will have problems going lower. That is why I asked about the Methotrexate to see how others have found it .
I will be asking my doctor about this .
Thanks again.