Hi Pauletta @rachelp, I'm able find a list of doctors in the Rheumatology Department for Mayo Clinic Rochester and Arizona just by using that phrase for the Google search. Dr. Thomas Osborn at the Rochester Mayo Clinic was the rheumatologist who diagnosed my PMR and was really good at helping me with my treatment plan. The thing I like about a Mayo Clinic campus is the different areas work together to help patients with difficult to diagnose health concerns. I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:
When I'm trying to find research on medical papers and articles I will use Google Scholar (https://scholar.google.com/) which allows you to sort the search results by year showing you the latest information on a search. I did a search on the phrase capsular lining +polymyalgia rheumatica and here is the results with 2018 selected to show the newest first.
I believe inflammation is a large symptom of PMR. My PMR was mostly in the hands, arms, shoulders, legs and joints. The first time I was diagnosed I waited too long to see the doctor and had to use a walker in order to walk. Pain was really bad but after meeting the rheumatogist and being examined, he diagnosed me right away with PMR and prescribed 20 mg prednisone. That was a morning appointment with him and I had another appointment with him the same day in the afternoon. I picked up the prescription and had lunch and by my afternoon appointment I no longer needed the walker. As much as I hated taking prednisone it was the magic pill for me. Dr. Osborn took the time with me to educate me about the disease and the treatment goal of tapering off of the prednisone gradually until the PMR goes into remission however long it takes. The first occurrence for me took 3 years. The second occurrence after 6 years of remission took a year and a half to taper off of prednisone.
Did your doctor offer any treatments or other suggestions for you?