1. < Chronic Pain

Pain pump, I have one, how about one for you?

Posted by Stephen @wsh66, Nov 9, 2018

I have had an implanted pain pump in my abdomen for about 18 months. It is a miracle. I get a total of 4.764 mgs. of Dilaudid, If I administer all of the 10 extra micro does I can have in 24 hours. If I don't use those extra doses I get 2.74 mgs. over 24 hours. The effect is 300 times more effective than if I took the same dose orally. I go to my doctors office every 3 months to have the pump refilled. I'm there for about 15 minutes. The actual process of refilling the pump takes no more than 5 minutes and is painless. No prescriptions to worry about, no one wondering if I'm misusing or selling my pain meds, no one making me feel like a drug addict or a criminal. In our current climate this is even more important than it was two years ago. Many Doctors want nothing to do with pain patients or writing scripts for pain meds. I know many of you have been there. This method is especially good for back issues as the drug is delivered via a catheter which runs up my spin. Yes, I still have pain but it's pain I can live with. If your Doctor doesn't know about this or doesn't want to do it contact a pain clinic. The Doctor who put mine in is a Neurosurgeon. If you have any questions please respond.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

starfirey2k | @starfirey2k | Nov 18, 2020
In reply to @lisa7777 "What I don't get is they won't give us pain pills to cope BUT they'll give..." + (show)
@lisa7777

What I don't get is they won't give us pain pills to cope BUT they'll give it to you in a pump. This make who better? the Drs. pocket?

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just another thought: pills are much easier to sell on the street.

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wheelerma | @wheelerma | Nov 18, 2020

Who is the author of "Hope It Helps? Thank you. I looked it up and saw several.

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Stephen | @wsh66 | Nov 18, 2020
In reply to @lisa7777 "What I don't get is they won't give us pain pills to cope BUT they'll give..." + (show)
@lisa7777

What I don't get is they won't give us pain pills to cope BUT they'll give it to you in a pump. This make who better? the Drs. pocket?

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Drugs in the pump cannot be abused or resold plus the quantities needed. Are so small. Both you and your doctor are beyond reproach. 4mgs. Per 24 hours.

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Stephen | @wsh66 | Nov 18, 2020
In reply to @jfsherley "Did it help you a lot ?" + (show)
@jfsherley

Did it help you a lot ?

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Yes it made life bearable again. I still have pain but it's not so bad. I can function with a clear mind and don't have to deal with other side effects.

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Stephen | @wsh66 | Nov 18, 2020
In reply to @jfsherley "Did it help you a lot ?" + (show)
@jfsherley

Did it help you a lot ?

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Yes it did. I have my life back. Still have pain but it's nothing like it was and no side effects.

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Erika | @erikas | Nov 19, 2020
In reply to @ga29 "I’m interested in learning more about this pump rather than the spinal cord stimulator. On Facebook..." + (show)
@ga29

I’m interested in learning more about this pump rather than the spinal cord stimulator. On Facebook for a pain group, I heard on a recent zoom call, a specialist said it would not be effective for my Tarlov cyst because it’s at the S2 level. She said the scs don’t really work below the lumbar level. Does the pain pump?

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@ga29 Welcome to Mayo Clinic Connect. You are interested in a pain pump and connecting with members. You are wondering if the pain pump will work for you despite you having a Tarlov cyst below the lumbar level.

May I ask where in the process you are regarding the decision for a pain pump?

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1 reply
jfsherley | @jfsherley | Nov 22, 2020
In reply to @kimspr3 "HELLO, THANK YOU SO MUCH!! ADHESIVE ARACHNOIDITIS IS ALSO CALLED A.A. EAISER TO WRITE. IT IS..." + (show)
@kimspr3

HELLO, THANK YOU SO MUCH!! ADHESIVE ARACHNOIDITIS IS ALSO CALLED A.A. EAISER TO WRITE. IT IS CAUSED BY SPINE SURGEONS, NEUROSURGEONS, TEARING OF THE DURA, EPIDURAL'S, AND MORE. THEIR DIAGNOSIS TO THEIR PATIENTS, FAILED BACK SURGERY. IT STARTED IN 2008. I WAS NIEVE, UNEDUCATED, NO RESEARCH BEFORE MY LAMINECTOMY. HE CLAIMED I HAD SPINAL STENOSIS! I LATER FOUND OUT WITH SPINAL STENOSIS SITTING DOWN HELPS. IT THAT NEVER HELPED ME! I DID NOT ASK WHY. HE REMOVED, S-1 L-2 L-3 L-4 L-5 NO FUSION. FOR PATIENTS PRYER TO SURGERY YOU ARE SUPPOSED TO SEE THE SURGEON IN THE HOLDING AREA, NOT ALL BUT MOST IN THE OR, RECOVERY. I DID NOT. EVERY TIME I HAD A PROCEDURE I BECAME WORSE. TO MAKE IT SHORT. LUMBAR SPINE, SCAR TISSUE IS STUCK AROUND THE NERVES WHICH CAUSES DEBILITATING PAIN. MY HANDS, LEGS, ARE JUMP AT TIMES FROM NERVES. SITTING, STANDING, BENDING ETC IS PAINFUL. DON'T DRIVE ANYMORE. LIFE AS I NEW IT IS GONE. I HAVE TRIED TO GO TO THE SENATE, CONGRESS, TO PASS A BILL THAT PATIENTS MUST BE TOLD POSSIBILITIES. I AM NOT SAYING IT WILL HAPPENED TO EVERYONE AT ALL. INFORMATION ABOUT A.A. IS ON THE INTERNET HERE AND IN EUROPE. MAY I SUGGEST BEFORE SURGERY BRING UP ADHESIVE ARACHNOIDITIS. LET THE MANY ARROGANT NEUROSURGEONS KNOW THAT YOU ARE AWARE OF A.A. THEY "DO" KNOW WHAT IS IS! I HAVE A WONDERFUL PAIN MANAGEMENT/ ANESTHESIOLOGIST. STARTED ME ON SOMETHING NEW FOR PAIN I JUST STARTED. MY SITUATION IS VERY COMPLEXED. MY SPINE CAN NOT BE TOUCH ANYMORE WHICH I WOULD NEVER DO ANYWAY. ALL IM SAY IS TO DO YOUR HOMEWORK, ASK QUESTIONS. I DID NOT.

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Kimspr3 I’m really sorry you have been through all of that and I was wondering if you know about some meds for the nerve jumping in your legs it’s called pramipexole I have that occasional and that’s what my Dr gave me for it

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Stephen | @wsh66 | Nov 22, 2020

Amitriptyline also works for that. Night time though, makes you sleepy. Stops the legs from waking you.

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rsj | @rsj | Nov 23, 2020

I've had extremely severe nerve pain from my back and everything down to the bottom of my feet for 27+1/2 years. It took 13 years to find the right med combination, 180 mg.'s of methadone, and 75 mcg.'s of fentanyl. I was pain free for over 13 years! FREE of pain!! Until this opioid BS started. Now I'm on 80 mg.'s of methadone, and 3,000 mg.'s of robaxin. Back in pain again, and the doctor that has been prescribing me these meds no longer wants to prescribe any opioids. I never once ever had one thought that I was near an overdose, or that I was in any danger. BS propaganda!! If you follow your physician's directions, you won't die. I was with the U of Chicago. I also have Dysphagia, and COPD because of it. It is well managed with many neb treatments during my long day. You say pain pump, I have one, how about you getting one too?? I've found a doctor who will implant the pump, but he doesn't do the monthly maintenance, you know, supply the meds. I have Blue Cross Community, that's Illinois medicaid. I have looked and looked for someone who will supply the meds, but nothing is what I've come up with. I cannot even make contact(get a response) with the doctor who's been prescribing the methadone. I don't want to die, at least not this way, but my plans are to scale way down on my nebulizer treatments until pneumonia sets in, then stop all treatments and die. Believe me, it's not what I want. But without help, I am lost as to what else to do. No one has shown the least little bit of wanting to help. Tragic!

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3 replies
bustrbrwn22 | @bustrbrwn22 | Nov 23, 2020
In reply to @rsj "I've had extremely severe nerve pain from my back and everything down to the bottom of..." + (show)
@rsj

I've had extremely severe nerve pain from my back and everything down to the bottom of my feet for 27+1/2 years. It took 13 years to find the right med combination, 180 mg.'s of methadone, and 75 mcg.'s of fentanyl. I was pain free for over 13 years! FREE of pain!! Until this opioid BS started. Now I'm on 80 mg.'s of methadone, and 3,000 mg.'s of robaxin. Back in pain again, and the doctor that has been prescribing me these meds no longer wants to prescribe any opioids. I never once ever had one thought that I was near an overdose, or that I was in any danger. BS propaganda!! If you follow your physician's directions, you won't die. I was with the U of Chicago. I also have Dysphagia, and COPD because of it. It is well managed with many neb treatments during my long day. You say pain pump, I have one, how about you getting one too?? I've found a doctor who will implant the pump, but he doesn't do the monthly maintenance, you know, supply the meds. I have Blue Cross Community, that's Illinois medicaid. I have looked and looked for someone who will supply the meds, but nothing is what I've come up with. I cannot even make contact(get a response) with the doctor who's been prescribing the methadone. I don't want to die, at least not this way, but my plans are to scale way down on my nebulizer treatments until pneumonia sets in, then stop all treatments and die. Believe me, it's not what I want. But without help, I am lost as to what else to do. No one has shown the least little bit of wanting to help. Tragic!

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@rsj. Too many of us are in real pain but can’t get pain medication because of the abusers. Something’s got to change. I am so sorry you are going through this.

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