I had had Left knee replacement X2 within the last three years and there was still constant pain in my knee but had a pain pump before my knee surgery and my pain specialist told me it would help my knee but it never did. It helped my back and sciatica but did not touch my fibromyalgia nor my knee pain. it was later determined that my knee pain was due to nerves not from the knee itself. However, my pain specialist took me off the pain pump due to a bunch of misunderstandings and I am now in great pain in my back and my sciatica plus the knee pain. I am miserable but because I wrote too many messages explaining my predicament, my pain specialist took me off the portal so I could no longer talk to her that way. She is not going to put me back on the pump and I don't know where to go from here. I cannot do even light housework and am so very frustrated. She worked two hours away from us so having to drive for more than four hours was difficult for both of us; so I tried a local pain specialist in my small Arizona town. He recommended some long acting opioids for me and then denied that he had ever said that; in the meantime, I was being taken off gradually from the pump and in explaining what happened, I wanted back on the dosage I was on but she will not increase it again. In asking her for help with explanations of what had transpired, I wrote too many portal messages so was taken off the portal. What??? How am I supposed to get help?? Is there anyone in Arizona who manages pain pumps? Is that good healthcare to not let patients ask for help through their portal? I thought that was what it was for!
Or should I just go back on opioids again?