Pain pump, I have one, how about one for you?

I’m interested in learning more about this pump rather than the spinal cord stimulator. On Facebook for a pain group, I heard on a recent zoom call, a specialist said it would not be effective for my Tarlov cyst because it’s at the S2 level. She said the scs don’t really work below the lumbar level. Does the pain pump?

Is there any certain thing I should know to try to convince someone to prescribe a pain pump? Nothing works for me including the Ketamine nasal spray. I took a Percoset for dental surgery and that helped a lot, but good luck with any doctor prescribing that in todays culture.

I can only speak for myself, but the pump my husband had implanted for cancer pain did him no good, the drug (morphine) was ineffective and made him sicker and the trauma of the surgery took a very heavy toll. It is a procedure that I deeply regret subjecting him to. In theory, a pump sounds wonderful, but in practicality, for us, it was a disaster.

Just find someone who does them. They have a process to determine if it's for you. A non-pain pump doc just doesn't want to loose the business.

Yes, it blocks almost all pain, at least to a bearable level. There should be a process of tests and interviews to determine if it is for you. Gene testing to find the right drug is also important. If your dealing with docs who don't think it's important, move on. Dr. Park, MHealth Mpls. MN

We did this at the Mayo Clinic in Rochester, the best of the best, and the outcome was still poor.

*I'm not sure Mayo is the best of the best. They are all about the money and don't take medicare unless you started treatment with them prior to turning 65. I went there when I was looking for treatment for my cancer. Consult after consult and no one ever remembered who I was. I was 11 weeks out from my diagnosis and on my third trip to Mayo some bonehead ina $6,000.00 suit said, I'm sorry to tell you this Mr. Hodder, but you have cancer. Very impersonal and ill informed and way too many expensive suits and the art was awful. That was the last straw. I was treated at the U of MN, MHealth and lived which no one was expecting me to do partially because what I had was rare no one anywhere I went had ever treated and it took so log to get started.

If they did such a poor job with your husbands pain I wouldn't consider that a great endorsement of their services. Morphine didn't work and it sounds like they didn't try other drugs. GeneSight testing would have likely revealed that morphine wouldn't work. My testing which was after my cancer did show that like I told my doctors, "morphine doesn't work for me." My doctors listened and tested other drugs vis a small dose via spinal tap. If they didn't do gene testing, (which they now do), they certainly could have tried the drugs via spial tap to see what would work.

A friend of mine just got great treatment for cancer at Mayo. My treatment may have been fine but it also would have required me to move to Rochester for 3 months plus which was just too much.

Most people get great treatment at Mayo I didn't. Pain pumps provide relief to most people but didn't work for your husband. Nothing is 100 all the time.

Love and Blessings

Did it help you a lot ?

The book is called “ Hope something helps “?

What I don't get is they won't give us pain pills to cope BUT they'll give it to you in a pump. This make who better? the Drs. pocket?