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Pain pump, I have one, how about one for you?

Chronic Pain | Last Active: May 4 11:25am | Replies (319)

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@kimspr3

HELLO, THANK YOU SO MUCH!! ADHESIVE ARACHNOIDITIS IS ALSO CALLED A.A. EAISER TO WRITE. IT IS CAUSED BY SPINE SURGEONS, NEUROSURGEONS, TEARING OF THE DURA, EPIDURAL'S, AND MORE. THEIR DIAGNOSIS TO THEIR PATIENTS, FAILED BACK SURGERY. IT STARTED IN 2008. I WAS NIEVE, UNEDUCATED, NO RESEARCH BEFORE MY LAMINECTOMY. HE CLAIMED I HAD SPINAL STENOSIS! I LATER FOUND OUT WITH SPINAL STENOSIS SITTING DOWN HELPS. IT THAT NEVER HELPED ME! I DID NOT ASK WHY. HE REMOVED, S-1 L-2 L-3 L-4 L-5 NO FUSION. FOR PATIENTS PRYER TO SURGERY YOU ARE SUPPOSED TO SEE THE SURGEON IN THE HOLDING AREA, NOT ALL BUT MOST IN THE OR, RECOVERY. I DID NOT. EVERY TIME I HAD A PROCEDURE I BECAME WORSE. TO MAKE IT SHORT. LUMBAR SPINE, SCAR TISSUE IS STUCK AROUND THE NERVES WHICH CAUSES DEBILITATING PAIN. MY HANDS, LEGS, ARE JUMP AT TIMES FROM NERVES. SITTING, STANDING, BENDING ETC IS PAINFUL. DON'T DRIVE ANYMORE. LIFE AS I NEW IT IS GONE. I HAVE TRIED TO GO TO THE SENATE, CONGRESS, TO PASS A BILL THAT PATIENTS MUST BE TOLD POSSIBILITIES. I AM NOT SAYING IT WILL HAPPENED TO EVERYONE AT ALL. INFORMATION ABOUT A.A. IS ON THE INTERNET HERE AND IN EUROPE. MAY I SUGGEST BEFORE SURGERY BRING UP ADHESIVE ARACHNOIDITIS. LET THE MANY ARROGANT NEUROSURGEONS KNOW THAT YOU ARE AWARE OF A.A. THEY "DO" KNOW WHAT IS IS! I HAVE A WONDERFUL PAIN MANAGEMENT/ ANESTHESIOLOGIST. STARTED ME ON SOMETHING NEW FOR PAIN I JUST STARTED. MY SITUATION IS VERY COMPLEXED. MY SPINE CAN NOT BE TOUCH ANYMORE WHICH I WOULD NEVER DO ANYWAY. ALL IM SAY IS TO DO YOUR HOMEWORK, ASK QUESTIONS. I DID NOT.

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Replies to "HELLO, THANK YOU SO MUCH!! ADHESIVE ARACHNOIDITIS IS ALSO CALLED A.A. EAISER TO WRITE. IT IS..."

Hello @kimspr3 - I thought you may also be interested in a conversation with other members on adhesive arachnoiditis, https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/

Kimspr3 I’m really sorry you have been through all of that and I was wondering if you know about some meds for the nerve jumping in your legs it’s called pramipexole I have that occasional and that’s what my Dr gave me for it