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Pain pump, I have one, how about one for you?

Chronic Pain | Last Active: May 4 11:25am | Replies (319)

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@mlross4508

Thanks for your support. I’ve never heard of the arachnoiditis so I have no idea what it is. I will look it up. I’ve recently had several biopsies taken from my ankle kne and hips on each side so determine if and how well my nerve activity is doing. When I see my pain Mgmt Dr monthly , I’m always asking about new therapies, treatments etc. I’m not giving up, though in the past I’ve become depressed as I was once a very active person, now I look forward to sitting in my recliner with my feet elevated as that seems to be the only way that I can get any relief. Other than from meds, which aren’t alwYs that effective.

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Replies to "Thanks for your support. I’ve never heard of the arachnoiditis so I have no idea what..."

You should ask about Lyrica, (and Gabapentin), and amitriptyline for bone pain or nerve pain Narcotics can only do so much and large doses make you numb, not high but numb.

@mlross4508
I hear you on the recliner!! I've owned a restaurant for 19 years and had to just close it down several years ago because I can't be there to run it. I'm used to working 6 or 7 days per week and was busy doing something all the time. Now about all I can do is go from the couch to the bathroom and back. It's so painful to sit, stand, walk, etc. - everything! I only leave the house when I go to a doctor's appt. I don't have arachnoiditis but I do have multiple Tarlov cysts on my spinal cord that are pushing on the cauda equina nerves in the sacral area causing everything from my lower back and to my toes to malfunction. I also have a tethered cord which is like a nerve at the end of your spinal cord that gets pulled tight and doesn't release. All of this is just from a slip & fall!! You are not alone in the daily struggle. The best thing to do is to get your phone and laptop with you on the recliner and start researching and advocating for yourself to find someone that specializes in your condition. You may have to go through a dozen different doctors until you find the right one. Keep asking questions and push for answers. Also, I was made to go talk to a mental health person because my doctor said anyone with a chronic condition is depressed. I am depressed but only because of the pain and not being able to do anything. I found that it's nice to just get things off your chest and talk to an unbiased person. Best of luck to you and try to hang in there!