Connect
← Return to Pain pump, I have one, how about one for you?
Discussion
Pain pump, I have one, how about one for you?
Chronic Pain | Last Active: May 4 11:25am | Replies (319)Comment receiving replies
@kimspr3
Normally arachnoiditis is a condition caused by surgeries, injections, etc., a side affect I guess. I'm surprised that none of your doctors mentioned that to you. Do you mean you are unable to find anything that explains your condition or that doctors are not educated about it? I know arachnoiditis is rare and so are Tarlov cysts (perineural cysts) which is what I have. Don't give up. There has to be some doctors that specialize in your condition. I found only 3 neurosurgeons that specialize in my cysts. I live in Wisconsin and had to travel all the way to Dallas, TX. The worst thing you can do is settle for just being a chronic pain patient and thrown into pain management. Keep pushing and asking questions!!! Best of luck to you!
Replies to "@kimspr3 Normally arachnoiditis is a condition caused by surgeries, injections, etc., a side affect I guess...."
I HAD TO RESEARCH ON MY OWN. NOT ONE DR. TOLD ME THEY HEARD OF IT! I SPEAKING NEUROSURGEONS, SURGEONS.
Connect
HELLO, THANK YOU SO MUCH!! ADHESIVE ARACHNOIDITIS IS ALSO CALLED A.A. EAISER TO WRITE. IT IS CAUSED BY SPINE SURGEONS, NEUROSURGEONS, TEARING OF THE DURA, EPIDURAL'S, AND MORE. THEIR DIAGNOSIS TO THEIR PATIENTS, FAILED BACK SURGERY. IT STARTED IN 2008. I WAS NIEVE, UNEDUCATED, NO RESEARCH BEFORE MY LAMINECTOMY. HE CLAIMED I HAD SPINAL STENOSIS! I LATER FOUND OUT WITH SPINAL STENOSIS SITTING DOWN HELPS. IT THAT NEVER HELPED ME! I DID NOT ASK WHY. HE REMOVED, S-1 L-2 L-3 L-4 L-5 NO FUSION. FOR PATIENTS PRYER TO SURGERY YOU ARE SUPPOSED TO SEE THE SURGEON IN THE HOLDING AREA, NOT ALL BUT MOST IN THE OR, RECOVERY. I DID NOT. EVERY TIME I HAD A PROCEDURE I BECAME WORSE. TO MAKE IT SHORT. LUMBAR SPINE, SCAR TISSUE IS STUCK AROUND THE NERVES WHICH CAUSES DEBILITATING PAIN. MY HANDS, LEGS, ARE JUMP AT TIMES FROM NERVES. SITTING, STANDING, BENDING ETC IS PAINFUL. DON'T DRIVE ANYMORE. LIFE AS I NEW IT IS GONE. I HAVE TRIED TO GO TO THE SENATE, CONGRESS, TO PASS A BILL THAT PATIENTS MUST BE TOLD POSSIBILITIES. I AM NOT SAYING IT WILL HAPPENED TO EVERYONE AT ALL. INFORMATION ABOUT A.A. IS ON THE INTERNET HERE AND IN EUROPE. MAY I SUGGEST BEFORE SURGERY BRING UP ADHESIVE ARACHNOIDITIS. LET THE MANY ARROGANT NEUROSURGEONS KNOW THAT YOU ARE AWARE OF A.A. THEY "DO" KNOW WHAT IS IS! I HAVE A WONDERFUL PAIN MANAGEMENT/ ANESTHESIOLOGIST. STARTED ME ON SOMETHING NEW FOR PAIN I JUST STARTED. MY SITUATION IS VERY COMPLEXED. MY SPINE CAN NOT BE TOUCH ANYMORE WHICH I WOULD NEVER DO ANYWAY. ALL IM SAY IS TO DO YOUR HOMEWORK, ASK QUESTIONS. I DID NOT.