← Return to Autoimmune? Undiagnosed and don’t know where to go next

Discussion

Autoimmune? Undiagnosed and don’t know where to go next

Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)
Comment receiving replies
@shellieaxton

Thank you for all the welcomes. While I don't wish any illness on anyone it is a relief to know that I am not the only person with this problem.
I have had my last appointment with a specialist (Rheumatologist). I went to NC Baptist Wake Forest. I have been there twice. Both times the Drs acted like they were not interested in my case. It's very discouraging. I think I will start writing my symptoms down and when they occur. Sometimes I feel like I'm in a different world. I am in pain 24-7. But I refuse to sit down and give up. I had a carcinoid tumor that was removed in 2018 along with resection of the small bowel. However, I still have symptoms. I have had major testing and I am happy to say that I am cancer-free according to all testing.
Thank you to everyone for your time and suggestions.

Jump to this post

Replies to "Thank you for all the welcomes. While I don't wish any illness on anyone it is..."
Sundance(RB) | @sundance6 | Apr 6, 2020

shellieaxton, Believe when I say you are not alone! Many of us with various forms of Autoimune disease have the same issues with our medical industry! Unless you have a Tumor growing out of the side of our head they Blow you off and say it is all in your imagination! My feeling is they don't know how to treat it so they dismiss you!
Glad you found Mayo Connect! How did you find it? Was it recomended to you?
I can say very Truly I would not be alive today had it not been for this site and the Angels that suscribe to it!
It has been truly a Miricle for me!
Richard( aka, Sundance)

VIEW AND REPLY
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Apr 7, 2020

@shellieaxton - I recognize the 24/7 pain- for 10 years until I got a diagnosis- actually 2- and was treated. I also refused to accept being told it might be in my head... However, when treatments were done, I was a different person, not in a good way. The years of constant stress made my brain “tired”, like a burnout. I don’t have pain and getting used to the new me.

VIEW AND REPLY