← Return to Autoimmune? Undiagnosed and don’t know where to go next

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@gingerw

@shellieaxton May I add my welcome, also! We are not doctors, and cannot diagnose, but we do offer support, encouragement, and our own experiences as we all navigate our health journeys.
I can relate my experience to a diagnosis of Systemic Lupus, way back in 1988! As a dr explained to me, they started with a blood test, looked at results and values, then determined which test to do next, to narrow down what was going on with me. They factored in physical signs and symptoms. It is my understanding that autoimmune conditions can mimic other things, so they had to eliminate them one by one. This might be the phase you are going through.
May I suggest that you keep a journal of sorts, to write down different things you observe, like the bumps on your scalp. Note day, time, environment, pain/discomfort level. Remember, by the time you get back to dr, that symptom may not be present for him/her to observe. Details are a good thing.
Please come back and let us know how you are doing. What gives you relief right now from the bumps on your head, or overall discomfort?
Ginger

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Replies to "@shellieaxton May I add my welcome, also! We are not doctors, and cannot diagnose, but we..."

I was beginning to think I was the only one with this problem. In the last few months I have started having bumps on my head that at first I thought were cysts. They are painful sometimes. They just have clear fluid no infection. I'm really frustrated. I did test positive for Lupus Anticoagulant for a while. Then all of a sudden testing was negative.