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DiscussionAutoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)Comment receiving replies
Replies to "If I am understanding this correctly I would please like to add this: It appears to..."
@peach414144 Right. And it is dangerous in many ways, but it is what it is. I have at least 3 DNA issues which are systemic in part or totally, affecting the whole body. RYR2, FKTN, GSN. That means Everything is targeted by these. But when I go to the doc, they want to limit the visit to one issue, per Medicare rules. BS. When I go, I need to mention a half dozen things at least, such as tachycardia, bleeding from the penis, syncope, orbital purpura and/or blepharochalaisis, liver failure, splenomegaly, nausea, dementia. I want the doc to, at least, get me some help for these issues. Problem is, the next closest specialist for any of these is about 2000 miles away.
@peach414144 - You are correct- medical education today is very different from 30+ years ago. The basic structure is still there in learning how the body works. There is such a lot of new data coming out continuously. In the old days doctors/students would buy one major book in Internal Medicine, Pediatrics, Surgery etc. it doesn’t work well like that now. Many illnesses change and as you mentioned illnesses are now studied on a molecular level.
Within each specialty are many subspecialties nowadays etc. The more complicated or unusual illness the less likely it is for your primary care doctor to know much about it. However, a doctor should know when to find help from others! Signs and symptoms help, but many are not specific. Unfortunately, we have to know ourselves when our doctor is not enough. A good primary care doctor can be very helpful in managing referrals etc. and interpreting test results for example if you are seeing specialists elsewhere.