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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)Comment receiving replies
who are you seeing at University of Colorado. My daughter has been diagnosed with SFN. So far the only test that was negative was ACHR was a bit elevated - 0.06. She is being treated as idiopathic neuropathy and being treated with lyrica for pain management. I want to see if we can find someone who can try to further diagnose to see if we can determine underlying cause or if IVIG treatment might be suitable for her. She is only 21 and has been dealing with this for the last three years.
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@arunpandeyco Good morning. I’m so sorry that your daughter is so sick. I’m going to the neurology clinic at UCHealth, Anschutz Campus in Aurora. My husband just called the number for UCHealth and they found a doctor for us. Unfortunately, the doctor was doing a fellowship so has now moved on. 😢 I have a new one whom I’ve not met because she’s on maternity leave! There is also a doctor in Denver who specializes in autoimmune. I was just hunting around on the computer and found her (can’t remember her name). I never called her because I was doing ok. We have really liked the neuro-immunology clinic at UCHealth. All the doctors are good. Please let me know what happens and I’ll look for the doctor’s name again. Will you?