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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)Comment receiving replies
Thank you for the reply. I have a lyme test on the way. I've been thinking that is it even though western blot says negative. My worst symptoms are difficulty breathing with pain in my abdomen and now this heart rate and dizziness since last week won't let me get up and out of bed. I literally fall down. I was in process of starting my own business as well, but I can't even hold a pad of paper without pain under my sternum anymore, so I can't do much. I'm a single parent so not working isn't an option for me either, but I can't physically do it at the moment. It seems my symptoms are degenerative and progressively degenerating. Thank you for reaching out. I am at the point of trying anything. And I'm glad you have had some relief. Maybe there is a little hope for me.
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@heatherdoney74 Welcome to Connect, an online support and information community. People can share their symptoms and hopefully get answers from others experiencing the same problems. We’re not physicians, but we try to share what has worked or not worked. Have you thought of going to a large medical center or university hospital/medical school? With all of these new diseases popping up, local doctors don’t seem to have the most recent knowledge. The local doctors in my town didn’t know what was going on with me, until they finally agreed to an MRI. Once the neurologist saw the MRI, he knew to give me intravenous steroids, but didn’t really know what else to do. My husband was able to get an appointment at the university medical center and I’ve been under their care since. Since breathing seems to be your biggest issue, you might want to see a pulmonologist at a medical center. Can you ask your doctor to refer you and send your medical records? Let me know what happens, please. I care. Becky