HEATHER, My thoughts and Blessings go out to YOU! What you have is how I found Mayo Connect! It was in June of 2018 it hit me with a Monster Headache! I won't go inot all the details but they very much go along with what you went through! I've gone through Stage IV Colon cancer, severe Brain Injury, but nothing was worse than what this is!!
I went through every test and examination in our entire Hospital structure! They could find nothing! Finally watched a program on Professional Golfer Jimmy Walker. He and his wife finally after 20 + visits to doctors around the country. Finally came up with Lyme Disease! Started doing research like you and learned what you have learned.
There are several Good Web sites that explain alot about the Disease. BASICLY THERE IS NO CURE, ONLY CONTROLLING THE MISSORY!
In my case I had all the same symptoms you have, lack of energy, balance, Lyme Brain Fog and many other symptoms! My Worst Symptom was the Headaches. They were 24/7 in most cases.
Finally out of accident my PCP and I stumbled on to something to help. I took Oxcyconone periodocly for Burcitus in my right hip. I found the headaches went away!
I found by taking one when I wake up and then one about 2:30 PM I was functioning Great. So that's what I do!
I take a couple of herbal supliments to help certain symptoms.
(I don't even tell anyone what I take, so I won't be considered a Opiod Addict!)
My PCP is a very old school dr. and understands what I have been through! If I go to another dr. I get the lecture about Opid Abisie.
In my research I have found important info.
Lyme Disease mirrors other dieases. Fibromyalgia, lupus a,d West Nile! All of which there is really no cure for.
Since I still run my own company not working is not a option!
But I have found if I schedule an hour of down time in the early PM it really helps me function thoughout the day.
Stress is also a Big Factor! I just got through 3 weeks of Stress and fatigue and felt like Crap!
I spent this last weekend doing nothing and catching up on rest. Feeling really good now! You can reverse the over doing it by rest.
Please let me know if you have any other questions!
I would be Glad to Help!
My Blessings to You!
PS, I forgot one other thing, my last visit with a dr. recomended either Yoga or TaiChi! My YMCA has a Silver Sneakers Yoga Class that has really helped! The last thing is about every 45 days I have a Full Body Massaage using CBD Oil. Really is an energy Booster!
Sundance(RB)