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DiscussionAutoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)Comment receiving replies
Replies to "@julienned Welcome to connect where we all care about each other We aren't Dr,s but I..."
Hi @becsbuddy and @lioness
I have been experiencing symptoms for 9 months, however there have been several "red herrings" if you will--they believe I had mono at the start of it all, even though I had it already, and I also had staph in my lungs during this. I have seen several pulmonologists and they do not believe my symptoms are lung related. I do have some mild inflamation in the lungs, but I was told this is likely to be asthma and I have been prescribed three inhalers, two nasal sprays, and one pill. None of those have made a difference. However, I have recently gotten some relief from gastroenterology at Mayo. I saw a local gastroenterology who, without examining me, told me that this was all in my head. Luckily, I was fortunate enough to see Gastroenterology at Mayo and they found a pelvic floor disorder, specifically the anal sphincter not relaxing. I got into a pelvic floor pt program ans it has really helped with my abdominal pain and shortness of breath. I have also found a new gastroenterologist at home, and he thinks functional dyspepsia may also be at play. Although I have many other symptoms, any relief is welcomed! I also am returning to Mayo next week and they will be repeating a lot of the gastroenterology tests that I had performed locally.
Julianne