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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)Comment receiving replies
Hello @beanie300,
I am so pleased to hear that you were able to go to Mayo. It sounds as if you got some clues as to what might be going on with your health. Enough clues may eventually lead the doctors to find out what might be going on and then lead to a diagnosis. I'm sure that you are hoping that this is the case.
The Vitamin D level, at 5, was really quite low. This can be indicative of many things, but hyperparathyroidism is one that comes to my mind as I have this problem and it is associated with the parathyroid. Please be aware that the parathyroid is DIFFERENT than the thyroid gland. While the parathyroid is located in the same area, it serves a different function. The name of the test is PTH (or sometimes PTH intact). You might look through your medical records and see if anyone has tested for this. If not, it would be a good idea to ask for this test. If your parathyroid is not functioning correctly it can cause a lot of the symptoms you mentioned.
I'm looking forward to hearing from you again.
Replies to "Hello @beanie300, I am so pleased to hear that you were able to go to Mayo...."
@hopeful33250 @jenniferhunter do either of you know if there is a genetic link with hyperparathyroidism? My grandmother on my fathers side had it so I was wondering if that could increase my risk. My calcium levels are fine though, can they still look ok with hyperparathyroidism? If so I’ll be sure to ask for the test.
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@beanie300 @hopeful33250 My mom had an overactive parathyroid problem and it caused her blood calcium levels to be very high and it pulled calcium out of her bones. She had one of the four parathyroid glands removed and they tested blood levels while she was on the operating table to make sure that it was the correct one. Her blood calcium level with the diseased parathyroid intact was 12. Her calcium levels returned to normal after the surgery. Here is Mayo's information about Hyperparathyroidism (overactive).
https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194