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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Apr 15, 2020 | Replies (158)Comment receiving replies
@becsbuddy Hello Becky,
I'm glad that you are doing well at the Univ. of Colorado. I understand what you mean when you say, I'll have to settle for my new self. Adjusting to a new normal is a quantum leap, to say the least. It is so good to have you as part of our Connect community. You have given a lot of encouragement to a lot of people.
Just wondering, Becky, how are you being treated for Clippers? Is there a particular med and/or therapy that is helping you?
I'll gladly celebrate with you as you become acquainted with your new self!
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@hopeful22350. You asked about treatment for CLIPPERS. The main one is steroids, but it is difficult to use long term. Caused my osteoporosis! Several patients are using rituxan, a chemotherapy drug, which is not yet approved for this. Others use other chemo drugs. Who knows what the future holds!