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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Apr 15, 2020 | Replies (158)Comment receiving replies
Hello @tamiwright, welcome to Connect. I can't imagine how hard it must be trying to help your daughter find some answers and treatments to help her. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where other members who have multiple autoimmune conditions may be able to share their experience with you.
> Groups > Autoimmune Diseases > Undiagnosed and don’t know where to go next
-- https://connect.mayoclinic.org/discussion/undiagnosed-and-dont-know-where-to-go-next/
You might also be interested in viewing the following discussions related to your daughter's conditions and read what other members have shared.
> Groups > Diabetes/Endocrine System > Trouble with everyday realities of diabetes
-- https://connect.mayoclinic.org/discussion/trouble-with-everyday-realities-of-diabetes/
> Groups > Autoimmune Diseases > MCTD (Mixed Connective Tissue Disease)
-- https://connect.mayoclinic.org/discussion/mctd-mixed-connective-tissue-disease/
> Groups > Autoimmune Diseases > Raynaud's Syndrome
-- https://connect.mayoclinic.org/discussion/raynauds-syndrome/
Are you able to share the symptom that is causing your daughter the most trouble?
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I don't really know how to answer that question as it is different each day. I feel like she is doing better one day and then the next day we are having pain, fatigue, weight loss, incontinence not all necessarily on the same day. She has also develop a boil that we are having to go see a wound specialist as it is now an open hole.