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Autoimmune? Undiagnosed and don’t know where to go next

Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)
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@johnbishop

@becsbuddy welcome to Connect and thank you for sharing your story. I’m happy to hear you were able to find out what the diagnosis was and are getting treatment now.

Are you able to share anymore about your treatment and how it helps?

John

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Replies to "@becsbuddy welcome to Connect and thank you for sharing your story. I’m happy to hear you..."
Becky, Volunteer Mentor | @becsbuddy | Nov 13, 2018

I currently take 2000mg of CellCept, having tapered off of steroids. I’m also getting “pulse” steroids of 1000 mg weekly via infusions. Actually, nothing works. I’ve been on the Fb Clippers support group and the feeling is that it’s all trial and error. I really want to get better! I worry for my husband who is taking care on me, the house, and a sick dog. Not much help, I’m afraid.

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