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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Oct 12 11:44pm | Replies (166)Comment receiving replies
I, too, had some unexplained symptoms—vomiting for no reason, until I became dehydrated and lost 30lbs. My voice was slurred and gait unsteady. I was sure I had a stoke (I’m 70) but no one would listen. Finally, when I was non-responsive, they gave me an MRI. And NO ONE knew what they were looking at! I was admitted but my husband continued to search for a good neurologist. I was diagnosed with Clippers disease at University of Colorado where I continue to get care. I really agree with John. Try to get to Mayo Clinic or the university medical center in your state
Replies to "I, too, had some unexplained symptoms—vomiting for no reason, until I became dehydrated and lost 30lbs...."
@becsbuddy
Your post about Clippers Disease was a first for me. I see that at Mayo there is an exceptional neurologist, Dr. Tobin, who researches this and others disorders. He might be a good contact for anyone dealing with a neurological disorder that is hard to diagnose, here is a link to his profile, https://www.mayoclinic.org/biographies/tobin-w-oliver-m-b-b-ch-b-a-o-ph-d/bio-20150062
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@becsbuddy welcome to Connect and thank you for sharing your story. I’m happy to hear you were able to find out what the diagnosis was and are getting treatment now.
Are you able to share anymore about your treatment and how it helps?
John