My autoimmune markers all come back fine so they have never done further testing. As for mast cell activation syndrome, I believe I may have it but I have had a hard time getting a doctor to take that seriously. When I mentioned it to my primary care provider he said it’s very rare so it’s unlikely that I have it and when I went to see an allergist about it he said I just have idiopathic hives and dermatographia and that, because they can only do blood tests and not the back scratch test due to my dermatographia, he wouldn’t be able to test me for allergies as thouroughly as I would need. He told me to just keep taking my allergy meds and adjusting the dose until it helped.

Hello,

In 2015 I was diagnosed with chronic hives, which is MCAS. I was tested for everything, and nothing was found. I am in good health, except for the hives. I have spent a great deal of money trying many different medications and creams. Nothing worked. In 2017 I finally started getting Xolair shots to block the hives. A shot I am still using each month.

What I can share is some things I have found to help.

Black Seed Oil - smells really bad, but will stop the itching better than any cream, aloe vera, etc. that I tried. This was purchased as a low inflammation supplement but smells so bad I was unable to drink it. So, I thought to put directly on the hives, and it does help a great deal.

Just recently, I have begun taking Quercetin, DAO, Stinging Nettle, & Zinc, and a low histamine diet. I am beginning to feel a difference.

From my research (almost 10 years) I am seeing more and more folks with this issue and all I can get from any Dr. is basically, you just have to live with this.