Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Yes I am thank you
So what do you all think about a part of the colon being removed did any have this done and feel better and take less meds for constipation and have less constipation thanks LaNette
No experience with that, but have had 3 small bowel resections, because of bleeding & ulcerations, anyone have this experience?
No, but my colon’s the length of a freakin’ fire hose, so if anyone wants a section of it, be my guest. I have plenty to spare.
Besides the resections, they took out ileocecal valve. That causes SIBO and explosive diarea 😱😱
Oh so I don’t know what would be worse not going are going all the time thanks for the input
Lol ok think that is what mine is ugh thanks for the info
Sorry too here that good luck
Hi-I was recently diagnosed with torturous colon as well. It makes sense since Menopause I’ve experienced worse IBS symptoms. My doctor told me to add ground flaxseed to my diet and I can say this works really well! I sprinkle it ontop of food -you really don’t taste it- and it keeps me regular and stools are easy to pass. I had two polyps so I’m waiting for my results but not worried. Anyway ground flaxseed is definitely the trick for me -very high in fiber.
Welcome to Connect, @jennb, and thanks for sharing your insight about flaxseed. The therapeutic and beneficial properties of flaxseed are well known, and there is growing research to support its use. You might be interested in reading this journal article about "Dietary Flaxseed as a Strategy for Improving Human Health” https://www.mdpi.com/2072-6643/11/5/1171/htm
May I ask if you would share more details about the polyps you mentioned? Did you have a biopsy to determine their status?