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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 23 minutes ago | Replies (1118)
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@les2436

The pain is most of the time horrible, doctors have me on narcotics. Which is also know to cause constipation. I did call mayo about charitable care or financial assistance, told since I have medicaid I wouldn't qualify. Only for people that have no insurance with a rare disease. Is there any other way to get treated at Mayo?

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Replies to "The pain is most of the time horrible, doctors have me on narcotics. Which is also..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 26, 2019

Hello @les2436

Just a thought: If you can't be seen at Mayo right now, do you live within a reasonable driving distance of a university medical school or another large multi-disciplinary medical center? If so, this would be a good place to seek a second opinion on a treatment option that might be better for you than just using narcotics. In these larger, research-oriented medical centers the doctors communicate with each other and can coordinate your care in a more efficient way.

Many of us on Connect have had either hard-to-treat or hard-to-diagnose disorders and we have found it important to be our own advocates and seek out second and even third opinions.

I look forward to you posting again and hearing how the process of finding some non-narcotic treatment is going for you.

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