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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 4 hours ago | Replies (1117)

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@denisep

Hello. I also have a redundant colon. I am 51 yrs and have been constipated all my life. Thought it was normal to have a bm every week-10days. as I became an adult I started experiencing excruciating pain in the abdomen. Noticed it alway happened after eating certain foods like pasta, pizza, etc. I would just suck it up and deal with the pain. I started seeing my doctor about the chronic constipation and pain. He had me try several different meds and combinations of meds. After learning that my Grandmother who died of colon cancer at age 42 (before I was born) I went in for a colonoscopy. Thats when I was told I have a redundant colon and I was probably born with it. I have been seeing a couple different specialists at Stanford GI. Had a second colonoscopy and many embarrassing tests. I just started taking Trulance and I don't think it is doing anything for me. I now have been referred to a Motility specialist and awaiting the appointment. I will also be starting my 3 round of Physical Therapy to try to strengthen my pelvic floor muscles.

I wish I had some advise for everyone on this forum because it is a truly tortuous condition to have. I can say that if you cannot find a treatment that helps, don't give up! Make a list of all your symptoms and ask your doctor. Keep the pressure on him. If he doesn't know how to treat it, ask for a referral to a specialist like a motility specialist. Please keep posting to this site so we can learn from each others experiences.

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Replies to "Hello. I also have a redundant colon. I am 51 yrs and have been constipated all..."

I tried pelvic floor PT for over a year and it did not help me. I am missing a pelvic floor muscle. So after the removal of 18” of colon and the pelvic floor lift, none of my issues have been resolved.

Thank you for sharing. I appreciate the transparency and feel a bit better knowing that I’m not alone in this. I’m more so scared about the fact that I could actually get blocked. I will start to be more active in pressing my doctors.