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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@ahcasey13

It’s hard when it’s your “people” that doubt you and when the drs justify those doubts it isolates us and makes us feel even more alone and depressed. My mom is my best friend but if I’ve heard it once I’ve it a million times over the past 16 years “I think it’s nerves” or “stress” or “your meds” or “you just don’t eat right” and this last colonoscopy kinda sealed that thought for her when the dr said I need to work on my “emotions & stress plus have a med review”. Then I sent her info and research and a drawing of what our colons look like - Now she understands why I have pain all the time but I can still hear the disappointment in her voice when I can’t make it to work because of the diarrhea or the debilitating pain. I don’t want to be a burden but I know that I am.

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Replies to "It’s hard when it’s your “people” that doubt you and when the drs justify those doubts..."

Even though you feel like a burden to your mom, as I feel I am with my family and friends (especially my husband) too, they keep reminding me that they help and take care of me because that is what families and friends do. I feel tremendous guilt at times as well, but I try to remind myself that if it were the other way around I would do whatever it takes to be there for my family as well. Feeling guilt is a useless emotion. None of us are intentionally being sick or seeking attention.

People also tend to give advice or say stupid things like it's stress because they want to help and they don't know what else to say. I know they think these comments will make us feel better, when in fact it has the opposite effect. I have become very out spoken lately and started telling people that when Im not feeling well, and I tell you about my issues of the day, I'm just venting. I add that i'm not looking for an answer or advice. If I'm not asking for help I really don't want it. I just want you to listen and not say anything because there's nothing to say. A simple i'm sorry you're going through this is all that needs to be said. I have found this to be a tremendous help, especially with my mother. I have to remind her often that I just want her to listen and not give advice, but being straight forward has helped a lot. I don't know your relationship, but it's worth a shot for you to speak up that it bothers you when she's says things like it's stress.