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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@eppie

I completely understand where you’re coming from. People sometimes thinking you’re exaggerating or looking at you like you’re crazy. My sister, even though she’s seen me at my worst on several occasions still constantly says things like, “well you say you can’t eat this because it gets you sick”, or “it makes no sense. You can eat this but not that”. And some of the doctors are worse.

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Replies to "I completely understand where you’re coming from. People sometimes thinking you’re exaggerating or looking at you..."

It’s hard when it’s your “people” that doubt you and when the drs justify those doubts it isolates us and makes us feel even more alone and depressed. My mom is my best friend but if I’ve heard it once I’ve it a million times over the past 16 years “I think it’s nerves” or “stress” or “your meds” or “you just don’t eat right” and this last colonoscopy kinda sealed that thought for her when the dr said I need to work on my “emotions & stress plus have a med review”. Then I sent her info and research and a drawing of what our colons look like - Now she understands why I have pain all the time but I can still hear the disappointment in her voice when I can’t make it to work because of the diarrhea or the debilitating pain. I don’t want to be a burden but I know that I am.