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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 8 hours ago | Replies (1117)

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@ahcasey13

I’ve had horrible abdominal pain, bloating, diarrhea, constipation, vomiting and bleeding for years (16 years). I’ve had many colonoscopies, endoscopies, CTs, MRIs - basically you name it I’ve had it done .. 3 colonoscopies over the past 2 years multiple malignant carcinoid tumors were found and removed and I was told “don’t worry it’s a slow growing cancer”. My pain and symptoms never eased so for 16 years dr after dr told me the symptoms were because of cysts on my ovaries because of PCOS and because I was over weight. The gastrointestinal dr last year (I have since changed) neglected to tell me that my CT showed that I had football size masses on both ovaries - so I had a hysterectomy. Still my symptoms didn’t ease. I gave up and decided I just had to live with the pain and try to deal with it - I have extra clothes at work, in my car, in my purse. Fast forward to fall 2018 I begin fainting and losing weight I’ve lost 70lbs in a years. I had my 6th colonoscopy and endoscopy in 3 years last week (my blood work shows my iron, vitamin D, and vitamin B12 levels are depleted) my new gastrointestinal dr couldn’t complete my colonoscopy even though I did a 2 day prep. Endoscopy shows that my esophagus is constantly spasming and the opening to my stomach is small. Even without completing the colonoscopy it showed I have significant inflammatory bowel disease, an extremely “torturous” and spastic colon, severe IBS, and possible Crohns. I’m exhausted from the anemia along with all the colon issues and just being sick all the time. But mostly if drs would have taken the time to listen instead of just judging me as a “curvy” PCOS woman I could’ve gotten help before it got to this point. I don’t know where to turn now.

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Replies to "I’ve had horrible abdominal pain, bloating, diarrhea, constipation, vomiting and bleeding for years (16 years). I’ve..."

What are your doctors telling you to do from here? You have a lot to deal with!

I feel your pain. I hurt everyday. Can’t enjoy any good foods. I know some of these Drs think it’s just a part of aging. I’m 72 but I’m still a person. I had Cdiff this year & 4 relapses so in afraid of lots of things. I have a great GI & he probably saved my life with an FMT transplant. I’m either pooping too much or not pooping. It gets old. He said use miralax & I do when I have not pooped in a couple of days but it takes 3 days for it to work then I go 3 or 4 times a day for a few days. I don’t know what to do.