← Return to Anyone else have a Redundant / Tortuous Colon?
DiscussionAnyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)Comment receiving replies
Replies to "Hi @onaquest @flguy @carcar, A redundant colon is an abnormally long colon, especially in the final..."
Greetings Kanaaz-
I was scanning info on the Mayo connect and saw that you had tagged me two yrs ago! I've not been keeping up with this for that long either. So I was diagnosed with TORTUROUS colon in 2016, but didn't start to know I needed to ADDRESS it until like today
In researching..I see that I need to research this more
Any help is welcome!
Darlia
Hi Kanaaz, I'm new to this website and would like to introduce myself to everyone. Thought replying to you, the moderator, would be the best way. I was just told I have a redundant/fixed colon. Didn't surprise me much as I've suffered with IBS-C, dairy and gluten allergies all of my life. I've been through so many doctors and so many different opinions on what to eat, what not to eat and what drugs or supplements to take that it makes my head spin. This seems like such a great forum to discuss what works for you with others. The one solution I see most often commented on here is to take MiraLax everyday. That alone did not work for me. In combination with 2 stool softners every evening (taking the MiraLax in the am) worked to have a BM, but left me gassy and very bloated. Sadly, not good enough. I am currently working with a Nutritionist who is taking things very slowly, step by step to find a solution other than expensive drugs that cause massive side effects. Anyone out there try Linsess or Amitiza yet? If your thinking about it read the reviews!!! Stopped me dead in my tracks! I've been told this is my only solution short of surgery ever since they put this on the market. I refused to believe that. I'm tired of having to be home because my gut is so bad. I'm either bloated and can't wear my pants or I'm in pain and can't enjoy going out to dinner.
Currently, I'm trying keeping a food and liquid intake diary. Trying to increase liquid intake to at least 60 oz. a day. Helps to keep track. I've been told the Fodmap diet would not work for me. I'm currently trying low fiber because fiber makes me bloat. But here is the biggest experiment. 2 Stool softeners every night with 1-500mg Magnesium citrate tab. It's only been a week, but it's been a GOOD week! Some bloating, a bit gassy once in awhile but for the most part I can go every day and I'm not talking "nuggets" here!
If anyone out there would like to discuss issues and what's worked for them I'd love to hear it. I've struggled with constipation since I was 13 (that I remember being bad) I'm so tired of not being able to wear my clothes, the "HELP" I need sweat pants days. Of not being able to enjoy "relationship" time with my husband because I have a gut ache and feel "FAT".... I weigh 100lbs. :o(
I can't gain weight because I feel so full (bloated) I can't eat much. Trying to enjoy a vacation and worrying about how will I eat, what reaction will I have. Will I be stuck in a hotel room all bloated and gassy and can't go.
Ok...so I've vented. Anyone else ? Thanks and hope to hear from you all!!! Lets find solutions together!
I have battled IBS-C for two decades. Recently, a colonoscopy showed I had a tortuous colon. I relayed this info to a separate GI I'm seeing, (insurance issues).....and the GI told me there is no evidence to support that a tortuous colon can cause/complicate IBS. Is that true? The enormous daily discomfort I feel happens to be in my descending colon....which is exactly where the colonoscopy showed the tortuous colon. It's hard to me to fathom that as a coincidence.
I also have this just had a Colonoscopy on Monday after my surgery one year ago. I had a blockage on the left side and could not have a bowel movement. I had stool and blood coming out of my urethra. I went to two different emergency departments for help. Five months later I had surgery to have the left side removed and also had a fistula attached. I also had a fistula attached to my bladder.
I have blood spotting still from my bladder and produce air bubbles. I am seeing a kidney doctor and a urologist and had a scope and she could see the bubbles which is not normal. I also received a new rectum from the large colon.
Now I am waiting the two weeks to see if something is wrong with my stomach and the large colon is doing the same thing. I feel like here we go again.
I was diagnosed in 2010 with tortuous colon which was discovered during a routine colonoscopy. I have had very few problems until the beginning of 2019 when I began developing severe muscle spasms in my lower left abdomen and lower left back. I cannot think any other reason why these spasms would occur other than a result from the tortuous colon. I have also had severe constipation which I cannot find relief for. Has anyone else had anything similar happen?