Hi @caradivs !
I’m so glad to talk with someone in the same
position (more or less)! I agree, it’s almost impossible to find anything positive on this type of cancer and it’s really frustrating to find that there isn’t all that much research being done and the drug of choice is from the 1960’s! It seems just crazy to me
Have your doctors suggested any alternatives yet such as clinical trials , etc.? Let me know how you do on the Mitotane. I have been tolerating it quite well and have had my dosage increased once so far. Waiting to hear back on a blood test to find out of they will be increasing it again. Fingers crossed that it works!
Good luck to you!