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1kjewels (@1kjewels)

Adrenal Cancer.

Cancer | Last Active: Jun 28, 2021 | Replies (51)

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@1kjewels

Is there anyone else out there that has Adrenal Cancer?

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Replies to "Is there anyone else out there that has Adrenal Cancer?"

Oh my, @1kjewels. I do hate when members don't get connected with someone. It doesn't seem like we currently have members talking about adrenal cancer. Give me a few days. I'm going to work harder to get you connected. I've got a few options to pursue.

In the meantime, any updates on finding a clinical trial or the possibility of immunotherapy for you?

I was diagnosed with stage III adrenal gland cancer November 2017 . I also had developed severe Cushing’s. Due to the Cushing’s I started chemo immediately. 26 treatments all together. Had two surgeries June 2018 to remove tumor on my adrenal gland and lymph nodes in tumor bed and neck followed by five weeks of radiation. Currently on 6000 mg mitotane daily.

I had surgery for adrenocorticoid cancer at Mayo Clinic in Rochester in June 2018. 7 cm; they also removed my gall bladder. Decided not to take mitotane. Have had two scans since then, and both were clear.

I had surgery for adrenal corticoid cancer at Mayo Clinic in Rochester in June 2018. I chose to not take any mitotane or further treatment since I am 81. Scans since then have remained clear. Am now with Dr. Habra at M.D. Anderson in Houston.

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