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1kjewels (@1kjewels)

Adrenal Cancer.

Cancer | Last Active: Jun 28, 2021 | Replies (51)

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@colleenyoung

Welcome to Connect, @1kjewels. I understand that the side effects of mitotane can be quite challenging, although everyone is different. Are you experiencing side effects? Have you asked your oncologist about complementary or integrative therapies?

You may also be interested in this discussion on Connect:
– Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/

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Replies to "Welcome to Connect, @1kjewels. I understand that the side effects of mitotane can be quite challenging,..."

@colleenyoung
Hi Colleen! Thanks for the link/information. This rare cancer can seem a little isolating since there isn’t much information or studies being done.
So far I am tolerating the Mitotane well. They are gradually increasing the dose to find that sweet spot of effectiveness and toxicity. They are running tests to see if immune therapy is an option and are looking for any available clinical studies. My hope is that the Mitotane starts making some noticeable differences and I can maintain where I am currently.

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