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@donna562

Hi Colleen, I'm sorry, I just saw your response. Yes, I suppose having the trach set sort of validates that yes, that really did happen! (Not that anyone would doubt it, since I have scars to prove it, but the memories are so, so blurry.) I am just now, 8 months out and 85% recovered, finally starting to "trust the process" and believe that yes, I can still keep improving. This is perhaps the toughest 15% to get back, though: my short-term memory and the 30 or so IQ points that I swear someone suctioned out in the ICU! I had a hypoxic brain injury due to the length of time that I was on the vent (and possibly because I waited so long to call 911). However, no one can define what that means long-term, and no one can guarantee that I'll get my full brain function back. As so many Severe Covid survivors are learning, there is much to more to learn about this disease than I think we know even now, a year out from the first confirmed cases.

At my therapist's advice, I have held off on getting my medical records as I do have PTSD symptoms and a lot of residual anxiety. As she says, it's normal to be anxious about your whole world falling apart when it really DID fall apart before! But at some point, I just want to understand, to mourn, and to celebrate the nitty-gritty of what my body and psyche went through, laying sedated and in complete isolation for those months. Thanks for asking!

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Replies to "Hi Colleen, I'm sorry, I just saw your response. Yes, I suppose having the trach set..."

@donna562, While you are learning about the after effects of the Covid, we (my family) are learning about the recovery and after effects of a serious spinal cord injury and paralysis for our adult son. It is definitely a learning process for us and a marathon of effort and courage by him. Your journey has not been easy, and I commend you for the courage and the determination to keep moving forward.

We are daily able to celebrate tiny daily improvements in our household as we witness the effects of his efforts. I believe that with time, and with the effort and therapy that you are receiving, that you will continue to experience improvements, and to adjust to your new normal, just as he has.
Are you able to resume any of your favorite activities yet? How do you pass the time now that you are out of the hospital?